Nail Patella Syndrome UK
Nail Patella Syndrome UK is a registered charity working to promote awareness for a condition that is said to affect 1/50,000 people. Our charity was officially registered in January 2003 and our main aims and objectives are to increase awareness and raise funds to allow the valuable research work to continue. We strive to provide support, advice and information to any person with NPS and also to work alongside the medical profession by providing documented evidence, genetic explanations and up-to-date research studies that may be taking place.
Another very important aspect of our charity work is to host medical conferences every two years. We would highly recommend anyone who is interested in attending these conferences to get in contact as they are such an amazing experience for those who may never have met anyone else with this rare genetic condition. We were honoured and privileged to have the most incredible speakers who travel from various parts of the world to share their knowledge in their specialist fields relating to Nail Patella Syndrome.
NPS (UK) work closely with NPSW (Nail Patella Syndrome Worldwide) which is our sister organisation based in the United States of America. Our aims and objectives are exactly the same and many of the UK members like to attend the conferences hosted in the USA also. For more information on NPSW, please visit www.npsw.org