Please read these Terms of Use ("Terms") carefully before using our websites further. These Terms are a legal document which sets out your rights and obligations, and those of Nail Patella Syndrome UK, a charity and registered in England under registration No. 1095621, in relation to our websites and the services offered by Nail Patella Syndrome UK through them. Use of our websites constitutes your acceptance of these Terms, which take effect on the date that you first use our websites. If you do not agree to these Terms (note in particular the disclaimers at Terms 6 and 7) please do not use our websites.
Access and use of our website is provided by Nail Patella Syndrome UK. References in these Terms to "we" or "us" or "our" refer to Nail Patella Syndrome UK.
Nail Patella Syndrome UK reserves the right to change these Terms at any time. Please check these Terms on a regular basis for changes. Your continued use of the site after changes are posted will mean you accept the Terms as modified by the posted changes.
Before accessing our websites you should obtain permission to do so from the telephone bill payer. Please note that information sent by e-mail is at your own risk as unfortunately security cannot be guaranteed.
You agree to use our websites only for lawful purposes, and in a manner that does not infringe the rights of anyone else, nor restrict or inhibit their use and enjoyment of our websites. You undertake to register for any of our services using accurate and current information about yourself and/or your family members - including your correct name, address and any other requested details.
a. All material on our websites is the copyright of Nail Patella Syndrome UK or third parties. You may view the contents of our websites on screen. Material submitted by users becomes the copyright of Nail Patella Syndrome UK. By submitting any material to the content of our websites, you: are representing that you are fully entitled to do so; grant us a non-exclusive, royalty-free, non-terminable licence right to copy, modify, distribute, show in public and create derivative works from that material in any form, anywhere; and authorise us to adapt the relevant material in the course of doing so, and so waive your moral rights to object to any derogatory treatment, or to be identified as the author, of the material in question.

You are permitted to print one copy of reasonable extracts from our websites for your personal use or private study and to save one copy of such reasonable extracts to your local hard disk for your personal use or private study. Apart from this and other than as authorized in Term 5 (b) below, no part of our websites or of any material on them may be reproduced in any form whatsover or translated without first obtaining the written permission of Nail Patella Syndrome UK or any other copyright holder. If you require any further information on permitted use, or a licence to republish any material, please e-mail your request.

b. Any material on our websites which is under the copyright of Nail Patella Syndrome UK may be reproduced for teaching or study purposes only without obtaining our prior consent. You may print and copy the pages for your private study or for teaching purposes in schools, colleges or universities, provided in each case that:

copyright and source indications are also printed and copied

no modifications are made to the materials and they are not used as part of any other publication

the document is printed and copied entirely and is not used in a derogatory or misleading context

c. If you are not sure whether or not any material can be printed or copied without first obtaining our permission please contact us first.

d. No other use of material in our websites may be made without first obtaining our written permission. In particular, material may not be incorporated in any other work or publication, whether in hard copy or electronic form and commercial use or publication of any material on our websites is strictly prohibited (other than as necessary for the purpose of viewing the site in the course of business).

e. If you wish to use any material on our websites other than in accordance with Term 5 (b) above please e-mail your request.
Nail Patella Syndrome UK has tried to ensure that the contents of our websites are accurate. However, Nail Patella Syndrome UK does not represent or warrant that the information accessible via our websites is accurate, complete or up to date. Availability of information is subject to change without notice. Our websites are made available for public use solely on the basis that Nail Patella Syndrome UK excludes to the extent lawfully permitted all liability whatsoever for any loss or damage arising out of use of our websites or reliance upon their contents. Nail Patella Syndrome UK is not a medical organisation, therefore we can only provide general information that is not intended to be a substitute for a proper medical assessment. If you have a specific question about a condition, we recommend that you obtain further information from your medical practitioner. The information contained on our websites was correct at the time of writing. However, due to research and medical advances, the content may not be completely up to date.
We do not warrant that the functions contained in our websites will be uninterrupted or error free, that defects will be corrected, or that our websites or the servers that make them available are free of viruses or bugs or represent full functionality, accuracy or reliability of the materials. We cannot accept any liability for any loss, disruption or damage to your data or your computer system which may occur as a result of you using our websites. There may also be times when our services become inaccessible as a result of technical difficulties experienced by Nail Patella Syndrome UK or on the Internet; we will, however, use reasonable skill and care to overcome these difficulties where they are within our control.
We reserve the right in our sole discretion to deny any user access to our websites or any part of them without prior notice. We also reserve the right to edit, or require a user to edit, material posted by them on our websites, if the relevant user or material appears to us to be in breach of any provision of these Terms. Any person whose access has been suspended or terminated must not re-register for, or re-access, our websites without our prior consent. You are responsible for everything which is done on or through our services while you are logged on to our service or through your e-mail address(es).
Users must not include an e-mail address, postal address, phone number, the address of any website, or any other information which is intended to facilitate direct communication, in material which is posted via our services. Users must not place material on, or otherwise use, our services for any business or commercial purpose. Users must not use their access to our services, or information gathered from it, for the sending of unsolicited bulk e-mail (sometimes known as spam). You are responsible for ensuring that no material you post, or which is posted through a machine on which you access our services, nor any activity or communication you make in connection with any of our services, will be capable of (a) infringing the intellectual property or other rights of any person or entity, (b) breaching any applicable law, whether criminal, tortious or otherwise, or (c) appearing to be offensive, threatening, obscene, pornographic, false, unreliable or misleading.
You acknowledge that we are not and cannot be responsible for the behaviour of users of our websites. We only provide a venue where our services may be accessed. In particular, you should be aware that Nail Patella Syndrome UK cannot pre-screen or monitor all the material contributed by users.
Our websites may contain links to other websites. Such links are provided for your convenience only. Nail Patella Syndrome UK does not control such websites and is not responsible for their contents. The mere inclusion of such links does not imply any endorsement of the material on those websites or any association with their operators. We cannot guarantee that these links will work all the time and Nail Patella Syndrome UK has no control over the availability of the linked pages.
If you only wish to link to a maximum of three pages on this site then you do not need to request permission. For descriptive text to accompany the link we suggest the following: "Nail Patella Syndrome UK is a UK-wide charity providing support, advice and information. The services aims to put those affected by disability in touch with each other in a secure and safe environment."
If you are asked for, and provide, details of a credit, debit or charge card; in that event, you must ensure that (a) you are fully entitled to use that card, and (b) it has available funds sufficient to cover the charges which are deducted from it. As part of the payment process, you will receive a verification e-mail, the purpose of which is to take reasonable steps to ensure that the e-mail address you have nominated during payment is controlled by you.
Nail Patella Syndrome UK's Privacy statement forms part of these Terms of Use.
If you see anything on our service which appears to infringe these Terms, then please e-mail: We do not generally monitor material contributed by users before it is placed on our websites, and so we are reliant upon users to point out any which infringes these Terms.
Nail Patella Syndrome UK has no control over or responsibility for the truth or accuracy of any material available on our services, whether provided by users or others. You should exercise no lesser degree of caution in appraising what you see on our service than you do offline. Even though users are prohibited from doing so, people may provide information, or otherwise behave, in a way that is unreliable, misleading or even illegal. Further, you should note that people may not necessarily be who they say they are. Your use of our services is entirely at your own risk. Accordingly, to the extent that the law permits, you release Nail Patella Syndrome UK, its directors, contractors and employees from all liability arising out of or in connection with our services and the material included on our websites by users and other third parties.
If there is any conflict between these Terms and any rules or specific terms of use appearing elsewhere on this site relating to specific material, then those specific terms or rules shall prevail.
If any of these Terms should be determined to be illegal, invalid or otherwise unenforceable by reason of the laws of any state or country in which these Terms are intended to be effective, then to the extent and within that jurisdiction in which that Term is illegal, invalid or unenforceable, it shall be severed and deleted from these Terms and the remaining terms shall survive, remain in full force and effect and continue to be binding and enforceable.
These Terms and use of our websites shall be governed by English law. All claims or disputes arising out of or in connection with our websites shall be subject to the exclusive jurisdiction of the courts of England. However, Nail Patella Syndrome UK shall have the right to commence and prosecute any legal or equitable action or proceeding before any court of competent jurisdiction to obtain injunctive and other relief in respect of the infringement of intellectual property rights.
We don't separately file the individual Terms of Use entered into by users when they visit our websites. You can access them at Please make a durable copy of these Terms by printing and/or saving a downloaded copy on your own computer.

Nail Patella Syndrome UK is a UK-wide charity providing support, advice and information.
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